Having an autistic child is not the end of the world--far from it. It is my hope that through this blog, at least a handful of people will get to understand that. My child is amazing, she brings us tremendous joy. We have good days & bad days, but we CHOOSE to focus on the good. Our belief is that by loving our daughter, giving her the most comfortable environment we can, and by most of all accepting her differences, she will continue to blossom--in her OWN way.

Showing posts with label perspective. Show all posts
Showing posts with label perspective. Show all posts

4/15/08

More Inspiration (from Joshua Eisenstat's family)

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Thank you, to Joshua Eisenstat's mom, Selma, and his Uncle Doug for replying to my blog. I appreciate you sharing more about Joshua.

I had written on April 2 in a post entitled "The Best From Today," about Selma Eisenstat and her message on CNN about her son Joshua. In response to that post, I received two replies that further touched me. Selma herself, along with Joshua's Uncle Doug left messages. I wanted to share them with everyone, so they wouldn't be missed.

Thank you so much for honoring my Joshua on your blog. I happened to run across it today, and was overwhelmed. Joshua lives on in my heart and memory every day; and to have his influence live on the lives of others means more than I can say. I have hundreds of stories and memories that bring peace and joy to my heart. I loved my son with all of my heart, and every day I am thankful that I am Joshua's Mom. Thank you for making my day today.

Selma

And...
I'm Joshua's Uncle Doug. I was privileged to live with Joshua three different times during my life so we were very close and his death was very hard on me and our whole family. Every time I see another person that has special needs, I smile. Yes, I know its hard, but I too also know the joy. I remember one time that Joshua was having a really bad seizure and he kicked his Dad during the seizure and once he was out of it, he hugged him and said sorry.

He had that pure love as they all do. I agree with Selma, the road is hard, but it is so worth it.

Uncle Doug

I was so moved by each of their replies, and of course with the piece from CNN. I transcribed the piece for a fellow blogger who requested it (see original post, in messages section), as an amateur, so my apologies if I got something wrong. The last paragraph, Selma's powerful advice to others, is beautiful. This is something I wish every parent of an autistic child could see:

"When I hear the child being diagnosed with autism or being born with disabilities, I don't ever know if they would understand if I said, 'do you know how lucky you are?' I know it's gonna be a hard road, I know that, um, you're gonna have sleepless nights and you're gonna have many tears, 'cause I've had many tears. But, um, you get, I feel like you get a slice of heaven and a pure love in your home. You learn service and you learn, you just work together. Once you stop seeing what my child can't do, and you start seeing what they can do, it's a beautiful...I wish you could have met him, just cause I could feel your love for him."
Please visit the Joshua Eisenstat blog, for video, pictures, and more thoughts on Joshua's life. It's quite plain to see how very loved Joshua was, and how deeply those who knew him, miss him.

4/10/08

Moved & Inspired

PhotobucketI watched the ABC special last night on Randy Pausch, a truly amazing human being. I typically don't watch these types of programs, but this one sparked my interest. I am so glad I watched it. To be honest, I don't think I've ever been so inspired by someone on television. I've spoken before on how the different challenges my daughter has faced, has given me tremendous perspective on our daily life, and on autism. Dr. Pausch has a perspective and a view on life, that is very rare (although, he says he's "not unique"). I was so moved by this program, by his lecture, and on this family's life.

I think for anyone dealing with any challenges in life (and that would be the majority of people in this world, I suspect), this is crucial to read or see. A lecture like this, these words of wisdom, really challenges you to look at your life in ways you may not have before. I know that raising an autistic child or a child with disabilities, is not easy. There are sleepless nights, doctors' and therapy appointments, meltdowns, etc. When you hear a man who is dying of pancreatic cancer, telling you he is happy and to not pity him, it really makes you think. I speak of "choosing" to focus on the positive, with my daughter and autism. For Dr. Pausch, that would translate into my being a Tigger versus an Eeyore. I love that!

For more information on pancreatic cancer, please visit the Lustgarten Foundation for Pancreatic Cancer Research. They are giving away 5,000 copies of "The Last Lecture" from 4/9 - 4/11 (as supplies last).

Here is the "Last Lecture," if you missed it:



We've been painting our home the last couple of weeks. After our master bedroom, it's time for the girls' rooms to be painted. We have been talking to them about choosing a color (for the older, it's between a light blue or lavender, for the youngest, it's yellow or red). I had planned on painting a mural or some fun designs on the wall. But, after being so moved last night, I think we will let the girls paint the pictures on their walls, if they want. I promise, Dr. Pausch (and I will post pictures here when they're done).

"If you lead your life the right way, the Karma will take care of itself, the dreams will come to you. And anybody who is out there who's a parent - if your kids want to paint the bedroom - as a favor to me, let them do it. It will be OK. Don't worry about the resale value of the house."


Thank you, to Dr. Pausch and his beautiful family for sharing their life, their story, and his lecture with the world.

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