End Abuse of Children in Residential Programs: ACT TODAY!

I received this from ASAN and wanted to spread the word. Please call your Representative and urge them to support and vote yes on H.R. 5876!

Grassroots Action Needed for Approaching Vote

June 10, 2008-After swift approval by the House Education and Labor Committee
on May 22, The "Stop Child Abuse in Residential Programs for Teens Act of 2008"
(H.R. 5876) appears headed to the House floor for a vote next week.

The bill is a welcomed response to thousands of allegations of child abuse and
neglect at private residential programs (therapeutic boarding schools, wilderness
camps, boot camps and behavior modification facilities) for teens with emotional,
behavioral or mental health needs, reported by the Governmental Accountability
Office (GAO).

Although some parents find such programs helpful, protections are needed
because too many children are being abused and nobody is watching. H. R. 5876
would make available information to help parents make informed choices about
their children's care in these placements.

H.R. 5876 was introduced on April 23 and is sponsored by committee chairman
George Miller (D-CA) and Representative Carolyn McCarthy (D-NY). It would:

• Keep teens safe with new national standards for private residential programs.
• Prevent deceptive marketing by requiring disclosure to parents of qualifications,
  roles and responsibilities of current staff and of substantiated reports of child
  abuse or violations of health and safety laws. Programs would also have to
  provide a link to or web address for information on all private residential programs
  kept by the U.S. Department of Health and Human Services (HHS).
• Hold teen residential programs accountable for violating the law by requiring
  HHS to conduct unannounced site inspections at least every two years.
  Civil penalties up to $50,000 would be levied for every violation of the law and
  parents would have a federal right to sue program operators that violate the
  national standards.
• Ask states to step in to protect teens in residential programs by providing grants
  to states that develop their own standards that are at least as strong as the
  national standards and inspect the programs in their state at least every two years.

Under Chairman Miller's leadership, this issue has garnered much-needed
attention. The Committee's website has links to testimony from an April 24
hearing, where the GAO and other experts testified and presented a follow-up
GAO report.

Please Act Today!

Urge your Representative to support H.R. 5876 today and to vote yes when
the bill is considered on the House floor.

• Call the Capitol switchboard at 202-224-3121 and ask for your Representative's
  office. You can also call your Representative's direct lines, available on his
  or her website through www.thomas.gov/

Now is the time to end abuse and neglect in private residential programs that are
intended to help teens with behavioral, emotional and mental health problems.

Earth Day 2008

I'm tired, so I don't have anything real insightful to post on this. Just a funny story:

In a gift shop today, my eldest alerts me, "Do not buy things that are made from animals!" I smiled at the statement, as it was only one of several declarations she made to me, on how I could be more green (most of which, I replied with "We already do that, sweetie."). I asked her why. She said "because it's from animals." I pressed her further, to see if she was just repeating what she had heard, or if she understood it it. I should know better by now. She then goes on to explain how animals suffer from it. Side note: to which I then add "well, that's partly why I don't eat meat." to which she adds, "WELL, no, that's not it, we NEED meat for that [to eat]!!!"

So, we continue walking through the gift shop. She looks down and says "THIS is animal," pointing to the rug (made from some type of animal skin). I told her "yes, it is." I distracted her by showing some of the decorations. We land on yet another animal skin rug (this store had at least 5 of them, and they appeared to be real--go figure, being there on Earth Day!). Now, she is getting angered. "Why would anyone make a rug from an animal? Don't they know they shouldn't do that????" I spoke in a low tone, assured her they probably do and maybe they were just recycling these? I also told her while it's good she has learned that lesson, perhaps this store wasn't the best place to preach on it.

She has a t-shirt declaring "Future President" and I have no doubt she will go very far. I've seen her advocate for her younger sister, debate adults on issues from politics to Barbies, and she always stands strong on her beliefs. This began very young, a few months shy of her 4th birthday, my husband and I took her to vote with us. While in line, she began chanting & singing songs about her favorite candidate. We promptly and gently gave her a lesson on campaigning at voting stations. My husband and I laughed at the thought of us getting kicked out because our preschooler was taunting other voters!

I will add--because I feel obligated to... My husband & I do all we can to be "green." We recycle, conserve water and electricity, use reusable grocery bags, buy organic and local, and so on. All of which, after today, my eldest is breathing a sigh of relief over. :)

Autism and Politics

Much has been written about the current presidential candidates and their positions on autism. Clinton has made several speeches in the last couple of years, Obama's website has several statements about autism, and McCain made a now infamous remark about a connection between vaccines and autism. And now, autism has even entered into a victory speech by Hillary Clinton this evening.

"We will tackle everything from autism to Alzheimer’s, cancer to diabetes, and make a real difference."

On her website, you can find Clinton's plan for autism. And here is what she said on World Autism Day. The most significant, from my perspective, was this:

I’ll also provide funding to school districts and universities to train teachers and other health and social services professionals in how to work most effectively with autistic children, since the number of children with autism in our public schools has skyrocketed in recent years. I’ll make sure every young person has a transition plan before they leave high school. I will also ensure that both children and adults with autism have access to the services they need - including housing, transportation, employment - to live rich and full lives. In all, I will commit $500 million annually to provide services to improve the quality of life for all people living with autism.

To be fair, here is Barack Obama's statement on autism:

Support Americans with Autism. More than one million Americans have autism, a complex neurobiological condition that has a range of impacts on thinking, feeling, language, and the ability to relate to others. As diagnostic criteria broaden and awareness increases, more cases of autism have been recognized across the country. Barack Obama believes that we can do more to help autistic Americans and their families understand and live with autism. He has been a strong supporter of more than $1 billion in federal funding for autism research on the root causes and treatments, and he believes that we should increase funding for the Individuals with Disabilities Education Act to truly ensure that no child is left behind.

More than anything, autism remains a profound mystery with a broad spectrum of effects on autistic individuals, their families, loved ones, the community, and education and health care systems. Obama believes that the government and our communities should work together to provide a helping hand to autistic individuals and their families.

Here is John McCain's statement on autism:

John McCain is very concerned about the rising incidence of autism among America's children and has continually supported research into its causes and treatment. He has heard countless stories about families' hardships obtaining a diagnosis for their children's autism and accessing quality medical treatment. He believes that federal research efforts should support broad approaches to understanding the factors that may play a role in the incidence of autism, including factors in our environment, for both prevention and treatment purposes.

John McCain was proud to lend his support to the Combating Autism Act of 2006, which he cosponsored, and worked to ensure its enactment. This law is helping to increase public awareness and screening of autism spectrum disorder, promote the use of evidence-based interventions, and create autism Centers of Excellence for Autism Spectrum Disorder Research and Epidemiology. John McCain understands that despite the federal and scientific research efforts to date, the exact causes of autism are not yet known and greater research is needed to understand this disorder. That is why in November 2007, he joined with Senator Lieberman in requesting the leadership of the Senate Health, Education, Labor and Pensions Committee, which has jurisdiction over federal research into autism, to hold a hearing on federal research efforts regarding factors affecting incidence and treatment in order to help determine where research efforts can best be directed. As President, John McCain will work to advance federal research into autism, promote early screening, and identify better treatment options, while providing support for children with autism so that they may reach their full potential.

I am wanting to stay away from a political debate on this blog, but I will say I do have objections to what's been said with regard to autism by some of the candidates. I am also weary that any of them will actually do much to help autistic adults or teens. There are far too many special-interest groups in Washington, that ultimately will persuade them. I have no doubt that Autism Speaks and others will sink their teeth into whomever is elected President. The funding will go toward those lobbyists who are most convincing (which translates into those finding cause, genetic testing, etc.).

Perhaps I am cynical, but my overriding theory on politicians is that, regardless of their best intentions, get into D.C. and all those promises they made to earn your vote slip away. To be honest, I won't choose who I am voting for based (at least not solely) on their stance on autism. Part of it is because I feel so much of what they say and promise is mostly rhetoric, the other part is I feel there are other issues at hand that take precedence over autism--when it comes to picking the next President.

I wish nothing more than to be pleasantly surprised. I do sincerely hope that whomever moves into the Whitehouse in several months is truly aware of autism, and the greater needs that exist today (adult programs, on top of that list).